Factors Influencing Caregiver Burden among Family Caregivers of Post-Stroke Persons in Wenzhou, China

  • Fengfan Qian Faculty of Nursing, Burapha University, Thailand
Keywords: stroke, caregiver burden, influencing factor, china

Abstract

Providing care to post-stroke persons who are dependent at home may lead to a burden for the family caregivers and there are various factors influencing the burden. This predictive correlational study aimed to examine the caregiver burden at three months after providing care for post-stroke persons and examine whether caregiver health status, caregiver amount of caregiving activities, and caregiver mutuality can predict caregiver burden at three months after providing care for the post-stroke persons in Wenzhou, China. A simple random sampling was used to recruit 101 family caregivers who took the patients to follow-up at the outpatient department of the First Affiliated Hospital of Wenzhou Medical University in China. Data were collected using questionnaires including the demographic questionnaire, The SF-12 Health Survey Version 2, The Caregiving Activities Scale, The Mutuality Scale, and The 12-item Zarit Burden Interview. Data were analyzed using descriptive statistics and standard multiple regression. The results showed that the family caregiver burden was at a mild to moderate level with a mean score of 18.29 (SD = 4.9). Standard multiple regression revealed health status (β = -.30, p < .001), caregiver amount of caregiving activities (β = .24, p < .001), caregiver mutuality (β = -.38, p < .001) as the predictor of caregiver burden. The findings provided information for developing an appropriate nursing intervention to prevent progressive caregiver burden, and, in turn, will enable post-stroke persons to receive effective care by targeting caregiver health status, caregiver amount of caregiving activities, and caregiver mutuality.

References

Caro, C. C., Costa, J. D., & Da Cruz, D. M. C. (2018). Burden and Quality of Life of Family Caregivers of Stroke Patients. Occup Ther Health Care, 32(2), 154-171. doi:10.1080/07380577.2018.1449046

Chen, L., Fan, H., & Chu, L. (2020). The Double-Burden Effect: Does the Combination of Informal Care and Work Cause Adverse Health Outcomes Among Females in China? Journal of Aging and Health, 32, 089826432091091. doi:10.1177/0898264320910916

Dewit, S. C. (2012). Medical Surgical Nursing - Text and Virtual Clinical Excursions 3.0 Package: Concepts and Practice.

Faridah, A. A., Noor Istiqomah, I., Kurnianto, S., & Khovifah, N. (2022). The Effectiveness of Range of Motion (ROM) on Increasing Muscle Strength in Stroke Patients: Literature Review. Nursing and Health Sciences Journal (NHSJ), 2(2), 137-142. doi:10.53713/nhs.v2i2.118

Ferro, J. M., & Santos, A. C. (2020). Emotions after stroke: A narrative update. Int J Stroke, 15(3), 256-267. doi:10.1177/1747493019879662

Gertrude, N., Kawuma, R., Nalukenge, W., Kamacooko, O., Yperzeele, L., Cras, P., . . . Seeley, J. (2019). Caring for a stroke patient: The burden and experiences of primary caregivers in Uganda - A qualitative study. Nurs Open, 6(4), 1551-1558. doi:10.1002/nop2.356

Han, Y., Liu, Y., Zhang, X., Tam, W., Mao, J., & Lopez, V. (2017). Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months. J Clin Nurs, 26(23-24), 4558-4566. doi:10.1111/jocn.13793

Helen, M., Evilianti, M., & Juita, R. (2021). The Effect of Active Range of Motion (ROM) Training on Muscle Strength of Non-Hemorrhagic Stroke Patients in BIDDOKKES Polda Metro Jaya. Nursing and Health Sciences Journal (NHSJ), 1(1), 74-77. doi:10.53713/nhs.v1i1.22

Kanai, M., Izawa, K. P., Kubo, H., Nozoe, M., Mase, K., & Shimada, S. (2020). Association of Health Utility Score with Physical Activity Outcomes in Stroke Survivors. Int J Environ Res Public Health, 18(1). doi:10.3390/ijerph18010251

Karlstedt, M., Fereshtehnejad, S. M., Aarsland, D., & Lökk, J. (2020). Mediating effect of mutuality on caregiver burden in Parkinson's disease partners. Aging Ment Health, 24(9), 1421-1428. doi:10.1080/13607863.2019.1619165

Kavga, A., Kalemikerakis, I., Faros, A., Milaka, M., Tsekoura, D., Skoulatou, M., . . . Govina, O. (2021). The Effects of Patients' and Caregivers' Characteristics on the Burden of Families Caring for Stroke Survivors The Effects of Patients' and Caregivers' Characteristics on the Burden of Families Caring for Stroke. Int J Environ Res Public Health, 18. doi:10.3390/ijerph18147298

Kes, D., & Aydin Yildirim, T. (2020). The relationship of religious coping strategies and family harmony with caregiver burden for family members of patients with stroke. Brain Inj, 34(11), 1461-1466. doi:10.1080/02699052.2020.1810317

Khanittanuphong, P., & Leelasamran, W. (2016). Assessing Caregiver Burden and Relationship between Caregiver Burden and Basic Activities of Daily Living in Stroke Patients with Spasticity. J Med Assoc Thai, 99(8), 926-932.

Kuriakose, D., & Xiao, Z. (2020). Pathophysiology and Treatment of Stroke: Present Status and Future Perspectives. Int J Mol Sci, 21(20). doi:10.3390/ijms21207609

Liu, Z., Heffernan, C., & Tan, J. (2020). Caregiver burden: A concept analysis. International Journal of Nursing Sciences, 7(4), 438-445. doi:https://doi.org/10.1016/j.ijnss.2020.07.012

Long, N. X., Pinyopasakul, W., Pongthavornkamol, K., & Panitrat, R. (2019). Factors predicting the health status of caregivers of stroke survivors: A cross-sectional study. Nurs Health Sci, 21(2), 262-268. doi:10.1111/nhs.12591

López-Espuela, F., González-Gil, T., Amarilla-Donoso, J., Cordovilla-Guardia, S., Portilla-Cuenca, J. C., & Casado-Naranjo, I. (2018). Critical points in the experience of spouse caregivers of patients who have suffered a stroke. A phenomenological interpretive study. PLoS One, 13(4), e0195190. doi:10.1371/journal.pone.0195190

Lu, Q., Mårtensson, J., Zhao, Y., & Johansson, L. (2019). Living on the edge: Family caregivers' experiences of caring for post-stroke family members in China: A qualitative study. Int J Nurs Stud, 94, 1-8. doi:10.1016/j.ijnurstu.2019.02.016

Lu, Q., Mårtensson, J., Zhao, Y., & Johansson, L. (2022). Needs of family members caring for stroke survivors in china: A deductive qualitative content analysis study by using the caregiver task inventory-25. BMC geriatrics, 22(1), 96-96. doi:10.1186/s12877-022-02774-5

Mamta, M., Sharma, R., & Goel, D. (2017). BURDEN OF STROKE SURVIVORS ON CAREGIVER AND QUALITY OF LIFE. International Journal of Current Research, 9, 60683-60686.

Mei, Y. X., Lin, B., Zhang, W., Yang, D. B., Wang, S. S., Zhang, Z. X., & Cheung, D. S. K. (2020). Benefits finding among Chinese family caregivers of stroke survivors: a qualitative descriptive study. BMJ Open, 10(10), e038344. doi:10.1136/bmjopen-2020-038344

Muhrodji, P., Wicaksono, H. D. A., Satiti, S., Trisnantoro, L., Setyopranoto, I., & Vidyanti, A. N. (2021). Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia. F1000Res, 10, 380. doi:10.12688/f1000research.52135.2

Olai, L., Borgquist, L., & Svärdsudd, K. (2015). Life situations and the care burden for stroke patients and their informal caregivers in a prospective cohort study. Upsala Journal of Medical Sciences, 120(4), 290-298. doi:10.3109/03009734.2015.1049388

Tough, H., Brinkhof, M. W., Siegrist, J., & Fekete, C. (2017). Subjective Caregiver Burden and Caregiver Satisfaction: The Role of Partner Relationship Quality and Reciprocity. Archives of Physical Medicine and Rehabilitation, 98(10), 2042-2051. doi:https://doi.org/10.1016/j.apmr.2017.02.009

Tsao, C. W., Aday, A. W., Almarzooq, Z. I., Alonso, A., Beaton, A. Z., Bittencourt, M. S., . . . Martin, S. S. (2022). Heart Disease and Stroke Statistics-2022 Update: A Report From the American Heart Association. Circulation, 145(8), e153-e639. doi:10.1161/cir.0000000000001052

Wang, X. (2021). How much do you know about stroke? Wenzhou Evening News.

Wang, Y., Tyagi, S., Hoenig, H., Lee, K. E., Venketasubramanian, N., Menon, E., . . . Koh, G. C. (2021). Burden of informal care in stroke survivors and its determinants: a prospective observational study in an Asian setting. BMC Public Health, 21(1), 1945. doi:10.1186/s12889-021-11991-3

Wu, C. Y., Skidmore, E. R., & Rodakowski, J. (2019). Relationship Consensus and Caregiver Burden in Adults with Cognitive Impairments 6 Months Following Stroke. Pm r, 11(6), 597-603. doi:10.1002/pmrj.12009

Wu, S., Wu, B., Liu, M., Chen, Z., Wang, W., Anderson, C. S., . . . Wang, L. (2019). Stroke in China: advances and challenges in epidemiology, prevention, and management. Lancet Neurol, 18(4), 394-405. doi:10.1016/s1474-4422(18)30500-3

Zhang, J., & Lee, D. T. F. (2019). Meaning in Stroke Family Caregiving in China: A Phenomenological Study. J Fam Nurs, 25(2), 260-286. doi:10.1177/1074840719841359

Published
2023-03-02
How to Cite
1.
Qian F. Factors Influencing Caregiver Burden among Family Caregivers of Post-Stroke Persons in Wenzhou, China. NHSJ [Internet]. 2023Mar.2 [cited 2023Mar.31];3(1):24-1. Available from: https://nhs-journal.com/index.php/nhs/article/view/169
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Articles