Lifestyle and Problems of HIV Sufferers in Surabaya: Phenomenological Study

Authors

  • Taufan Citra Darmawan Bachelor of Nursing Department, William Booth Health College, Surabaya, Indonesia, Indonesia
  • Lina Mahayaty Ners Department, William Booth Health College, Surabaya, Indonesia, Indonesia
  • Retty Nirmala Bachelor of Nursing Department, William Booth Health College, Surabaya, Indonesia, Indonesia

DOI:

https://doi.org/10.53713/nhsj.v3i2.261

Keywords:

HIV, Lifestyle, Problems

Abstract

People living with HIV AIDS (PLWHA) are someone who experiences physical, and psychosocial life threats, and social problems such as anxiety and depression. PLWHA are also very vulnerable to stigma which results in community discrimination. The complexity of the problems experienced by PLWHA requires special attention to be resolved immediately. The purpose of this research was to explore the lifestyle and problems of people living with HIV AIDS (PLWHA). This research uses a phenomenological study. The ethical test was obtained from STIKes William Booth. There are 5 informants selected based on the purposive sampling technique. The data was taken by means of an open-question questionnaire. Each respondent was given questions using the interview method and then recorded. There were 2 main topics that were asked, the first topic is the initial condition of being diagnosed with HIV and the secondary topic is the lifestyle and current problems. The results of the interviews found that the sample had suffered from HIV 5-8 years ago due to risky behavior. Diagnosed because he felt the symptoms of a disease that did not cure. Psychosocial complaints stem from internal feelings such as feelings of guilt, having no future, and fear of death. In addition, the problem of external stigma greatly threatens social relations activities with other people. Continuous social support is a basic need. Spending time alone and working became daily activities. HIV community groups are difficult to reach because of distance. Activities do not vary due to physical constraints such as the effects of medication and co-morbidities. Some have tried to exercise but are less successful. Need the right way to reduce the physical constraints felt by PLWHA, psychosocial support is needed to change the mindset of PLWHA. Sustainable programs that can reduce community stigmatization are the key to changing the quality of life of PLWHA.

 

References

Algarin, A. B., Varas-Rodríguez, E., Valdivia, C., Fennie, K. P., Larkey, L., Hu, N., & Ibañez, G. E. (2020). Symptoms, stress, and HIV-related care among older people living with HIV during the COVID-19 pandemic, Miami, Florida. AIDS and Behavior, 24, 2236-2238.

Anakwa, N. O., Teye-Kwadjo, E., & Kretchy, I. A. (2021). Effect of HIV-related stigma and HIV-related stress on HIV disclosure concerns: a study of HIV-positive persons on antiretroviral therapy at two urban hospitals in Ghana. Applied Research in Quality of Life, 16, 1249-1264.

Ayano, G., Duko, B., & Bedaso, A. (2020). The prevalence of post-traumatic stress disorder among people living with HIV/AIDS: a systematic review and meta-analysis. Psychiatric Quarterly, 91, 1317-1332.

Endrian Kurniawan, D., Sulistyorini, L., Rosyidi Muhammad Nur, K., Nur Khamid, M., Tri Afandi, A., Purwandari, R., & Ardiana, A. (2021). Risk of HIV Transmission Through Sexual Activities: A Survey among Hiv-Positive Gay Men in Jember, Indonesia. Nursing and Health Sciences Journal (NHSJ), 1(1), 38-42. https://doi.org/10.53713/nhs.v1i1.14

Garrido-Hernansaiz, H., & Alonso-Tapia, J. (2017). Associations among resilience, posttraumatic growth, anxiety, and depression and their prediction from stress in newly diagnosed people living with HIV. Journal of the Association of Nurses in AIDS Care, 28(2), 289-294.

Gottert, A., Barrington, C., McNaughton-Reyes, H. L., Maman, S., MacPhail, C., Lippman, S. A., ... & Pettifor, A. (2018). Gender norms, gender role conflict/stress and HIV risk behaviors among men in Mpumalanga, South Africa. AIDS and Behavior, 22, 1858-1869.

Herawati, Y., & Ritanti. (2021). The Relationship of the Role of Parents and Information Media with HIV/AIDS Prevention Behavior in Adolescents at SMAN 75 Jakarta. Nursing and Health Sciences Journal (NHSJ), 1(1), 57-63. https://doi.org/10.53713/nhs.v1i1.18

Kurniawan, D. E., Purwandari, R., Afandi, A. T., & Khamid, M. N. (2022). Optimizing the Role of Stakeholders in the Agricultural Intended HIV/AIDS Management in Jember District: Optimalisasi Peran Stakeholder Dalam Penanggulangan HIV/AIDS Berwawasan Agrikultura di Kabupaten Jember. DEDIKASI SAINTEK Jurnal Pengabdian Masyarakat, 1(1), 1–6. https://doi.org/10.58545/djpm.v1i1.3

Rendina, H. J., Gamarel, K. E., Pachankis, J. E., Ventuneac, A., Grov, C., & Parsons, J. T. (2017). Extending the minority stress model to incorporate HIV-positive gay and bisexual men's experiences: A longitudinal examination of mental health and sexual risk behavior. Annals of Behavioral Medicine, 51(2), 147-158.

Sanchez, A. B., & Kaul, M. (2017). Neuronal stress and injury caused by HIV-1, cART and drug abuse: converging contributions to HAND. Brain sciences, 7(3), 25.

Stadtler, H., Shaw, G., & Neigh, G. N. (2021). Mini-review: Elucidating the psychological, physical, and sex-based interactions between HIV infection and stress. Neuroscience letters, 747, 135698.

Tsuyuki, K., Cimino, A. N., Holliday, C. N., Campbell, J. C., Al-Alusi, N. A., & Stockman, J. K. (2019). Physiological changes from violence-induced stress and trauma enhance HIV susceptibility among women. Current HIV/AIDS Reports, 16, 57-65.

Watson, C. W. M., Sundermann, E. E., Hussain, M. A., Umlauf, A., Thames, A. D., Moore, R. C., ... & Moore, D. J. (2019). Effects of trauma, economic hardship, and stress on neurocognition and everyday function in HIV. Health Psychology, 38(1), 33.

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Published

2023-05-18

How to Cite

Citra Darmawan, Taufan, Lina Mahayaty, and Retty Nirmala. “Lifestyle and Problems of HIV Sufferers in Surabaya: Phenomenological Study”. Nursing and Health Sciences Journal (NHSJ) 3, no. 2 (May 18, 2023): 222–226. Accessed October 22, 2025. https://nhs-journal.com/index.php/nhs/article/view/261.

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